Principles and operational model for governing Diabetes Action Canada’s data repository for patient-oriented research

Donald Willison; Joslyn Trowbridge; Francis Sullivan; Karim Keshavjee; Michelle Greiver

doi:10.23889/ijpds.v3i4.594

Principles and operational model for governing Diabetes Action Canada’s data repository for patient-oriented research

Donald Willison, Joslyn Trowbridge, Francis Sullivan, Karim Keshavjee, Michelle Greiver

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

Abstract

Diabetes Action Canada is developing a data repository andregistry of potential research participants to support research,QI, and service to improve diabetes care. Central to the repositoryare pseudonymised linkable electronic medical records (EMRs) from family practices that are participating in theCanadian Primary Care Sentinel Surveillance Network (CPCSSN).

Original language	English
Title of host publication	International Journal of Population Data Science
Publisher	Swansea University
Number of pages	1
Volume	3
DOIs	https://doi.org/10.23889/ijpds.v3i4.594
Publication status	Published - 14 Sept 2018
Event	International Population Data Linkage Conference (IPDLN 2018) - Banff Centre, Banff, Canada Duration: 12 Sept 2018 → 14 Sept 2018 https://ipdln.org/2018-conference

Conference

Conference	International Population Data Linkage Conference (IPDLN 2018)
Abbreviated title	IPDLN
Country/Territory	Canada
City	Banff
Period	12/09/18 → 14/09/18
Internet address	https://ipdln.org/2018-conference

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.23889/ijpds.v3i4.594Licence: CC BY-NC-ND

Willison-2018-Principles-operational-model-IJPDS-CC
September 2018 © The Authors. Open Access under CC BY-NC-ND 4.0 (https://creativecommons.org/licenses/by-nc-nd/4.0/deed.en)
Final published version, 195 KBLicence: CC BY-NC-ND

Cite this

@inproceedings{4037b631581c45ba9a062118d3986919,

title = "Principles and operational model for governing Diabetes Action Canada{\textquoteright}s data repository for patient-oriented research",

abstract = "Diabetes Action Canada is developing a data repository andregistry of potential research participants to support research,QI, and service to improve diabetes care. Central to the repositoryare pseudonymised linkable electronic medical records (EMRs) from family practices that are participating in theCanadian Primary Care Sentinel Surveillance Network (CPCSSN).",

author = "Donald Willison and Joslyn Trowbridge and Francis Sullivan and Karim Keshavjee and Michelle Greiver",

year = "2018",

month = sep,

day = "14",

doi = "10.23889/ijpds.v3i4.594",

language = "English",

volume = "3",

booktitle = "International Journal of Population Data Science",

publisher = "Swansea University",

note = "International Population Data Linkage Conference (IPDLN 2018), IPDLN ; Conference date: 12-09-2018 Through 14-09-2018",

url = "https://ipdln.org/2018-conference",

}

Willison, D, Trowbridge, J, Sullivan, F, Keshavjee, K & Greiver, M 2018, Principles and operational model for governing Diabetes Action Canada’s data repository for patient-oriented research. in International Journal of Population Data Science. vol. 3, 594, Swansea University, International Population Data Linkage Conference (IPDLN 2018), Banff, Alberta, Canada, 12/09/18. https://doi.org/10.23889/ijpds.v3i4.594

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AU - Willison, Donald

AU - Trowbridge, Joslyn

AU - Sullivan, Francis

AU - Keshavjee, Karim

AU - Greiver, Michelle

PY - 2018/9/14

Y1 - 2018/9/14

N2 - Diabetes Action Canada is developing a data repository andregistry of potential research participants to support research,QI, and service to improve diabetes care. Central to the repositoryare pseudonymised linkable electronic medical records (EMRs) from family practices that are participating in theCanadian Primary Care Sentinel Surveillance Network (CPCSSN).

AB - Diabetes Action Canada is developing a data repository andregistry of potential research participants to support research,QI, and service to improve diabetes care. Central to the repositoryare pseudonymised linkable electronic medical records (EMRs) from family practices that are participating in theCanadian Primary Care Sentinel Surveillance Network (CPCSSN).

U2 - 10.23889/ijpds.v3i4.594

DO - 10.23889/ijpds.v3i4.594

M3 - Conference contribution

VL - 3

BT - International Journal of Population Data Science

PB - Swansea University

T2 - International Population Data Linkage Conference (IPDLN 2018)

Y2 - 12 September 2018 through 14 September 2018

ER -

Principles and operational model for governing Diabetes Action Canada’s data repository for patient-oriented research

Abstract

Conference

UN SDGs

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