Integrating healthcare data for enhanced citizen-centred care and analytics

Juliana Kuster Filipe Bowles; Juan Jose Mendoza Santana; Andreas Francois Vermeulen; Thais Christina Webber dos Santos; Euan Blackledge

doi:10.3233/SHTI200686

Integrating healthcare data for enhanced citizen-centred care and analytics

Juliana Kuster Filipe Bowles^*, Juan Jose Mendoza Santana, Andreas Francois Vermeulen, Thais Christina Webber dos Santos, Euan Blackledge

^*Corresponding author for this work

School of Computer Science

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

Abstract

The potential of healthcare systems worldwide is expanding as new medical devices and data sources are regularly presented to healthcare providers which could be used to personalise, improve and revise treatments further. However, there is presently a large gap between the data collected, the systems that store the data, and any ability to perform big data analytics to combinations of such data. This paper suggests a novel approach to integrate data from multiple sources and formats, by providing a uniform structure to the data in a healthcare data lake with multiple zones reflecting how refined the data is: from raw to curated when ready to be consumed or used for analysis. The integration further requires solutions that can be proven to be secure, such as patient-centric data sharing agreements (smart contracts) on a blockchain, and novel privacy-preserving methods for extracting metadata from data sources, originally derived from partially-structured or from completely unstructured data. Work presented here is being developed as part of an EU project with the ultimate aim to develop solutions for integrating healthcare data for enhanced citizen-centred care and analytics across Europe.

Original language	English
Title of host publication	Integrated Citizen Centered Digital Health and Social Care
Subtitle of host publication	Citizens as Data Producers and Service co-Creators
Editors	M. Hägglund, P. Gallos, K. Häyrinen, K. Saranto, P. Scott, A. Värri, J. Delgado, U.-M. Kinnunen, L.B. Pape-Haugaard, L.-M. Peltonen
Publisher	IOS Press
Pages	17-21
ISBN (Electronic)	9781643681450
ISBN (Print)	9781643681443
DOIs	https://doi.org/10.3233/SHTI200686
Publication status	Published - 26 Nov 2020
Event	EFMI 2020 Special Topic Conference: Integrating healthcare data for enhanced citizen-centred care and analytics - Online Duration: 26 Nov 2020 → 27 Nov 2020 https://efmi.org/2020/02/10/efmi-stc2020-citizen-centered-digital-and-integrated-health-and-social-services/

Publication series

Name	Studies in Health Technology and Informatics
Volume	275

Conference

Conference	EFMI 2020 Special Topic Conference
Abbreviated title	EFMI STC 2020
Period	26/11/20 → 27/11/20
Internet address	https://efmi.org/2020/02/10/efmi-stc2020-citizen-centered-digital-and-integrated-health-and-social-services/

Keywords

Healthcare
Data lake
Integration
Blockchain
Data analytics

Access to Document

10.3233/SHTI200686Licence: CC BY-NC

Bowles-2020-Integrating-healthcare-data-EFMI2020-17-CC
Copyright © 2020 The European Federation for Medical Informatics (EFMI) and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0).
Final published version, 744 KBLicence: CC BY-NC

SERUMS: SERUMS
Kuster Filipe Bowles, J. (PI)
European Commission
1/01/19 → 30/06/22
Project: Standard

Cite this

Kuster Filipe Bowles, J., Mendoza Santana, J. J., Vermeulen, A. F., Webber dos Santos, T. C., & Blackledge, E. (2020). Integrating healthcare data for enhanced citizen-centred care and analytics. In M. Hägglund, P. Gallos, K. Häyrinen, K. Saranto, P. Scott, A. Värri, J. Delgado, U.-M. Kinnunen, L. B. Pape-Haugaard, & L.-M. Peltonen (Eds.), Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators (pp. 17-21). (Studies in Health Technology and Informatics; Vol. 275). IOS Press. https://doi.org/10.3233/SHTI200686

Kuster Filipe Bowles, Juliana ; Mendoza Santana, Juan Jose ; Vermeulen, Andreas Francois et al. / Integrating healthcare data for enhanced citizen-centred care and analytics. Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators. editor / M. Hägglund ; P. Gallos ; K. Häyrinen ; K. Saranto ; P. Scott ; A. Värri ; J. Delgado ; U.-M. Kinnunen ; L.B. Pape-Haugaard ; L.-M. Peltonen. IOS Press, 2020. pp. 17-21 (Studies in Health Technology and Informatics).

@inproceedings{f19d1386bca541e3954b8210d5f8ab57,

title = "Integrating healthcare data for enhanced citizen-centred care and analytics",

abstract = "The potential of healthcare systems worldwide is expanding as new medical devices and data sources are regularly presented to healthcare providers which could be used to personalise, improve and revise treatments further. However, there is presently a large gap between the data collected, the systems that store the data, and any ability to perform big data analytics to combinations of such data. This paper suggests a novel approach to integrate data from multiple sources and formats, by providing a uniform structure to the data in a healthcare data lake with multiple zones reflecting how refined the data is: from raw to curated when ready to be consumed or used for analysis. The integration further requires solutions that can be proven to be secure, such as patient-centric data sharing agreements (smart contracts) on a blockchain, and novel privacy-preserving methods for extracting metadata from data sources, originally derived from partially-structured or from completely unstructured data. Work presented here is being developed as part of an EU project with the ultimate aim to develop solutions for integrating healthcare data for enhanced citizen-centred care and analytics across Europe.",

keywords = "Healthcare, Data lake, Integration, Blockchain, Data analytics",

author = "{Kuster Filipe Bowles}, Juliana and {Mendoza Santana}, {Juan Jose} and Vermeulen, {Andreas Francois} and {Webber dos Santos}, {Thais Christina} and Euan Blackledge",

note = "This research is funded by the EU H2020 project SERUMS: Securing Medical Data in Smart Patient-Centric Healthcare Systems (grant code 826278).; EFMI 2020 Special Topic Conference : Integrating healthcare data for enhanced citizen-centred care and analytics, EFMI STC 2020 ; Conference date: 26-11-2020 Through 27-11-2020",

year = "2020",

month = nov,

day = "26",

doi = "10.3233/SHTI200686",

language = "English",

isbn = "9781643681443",

series = "Studies in Health Technology and Informatics",

publisher = "IOS Press",

pages = "17--21",

editor = "M. H{\"a}gglund and P. Gallos and K. H{\"a}yrinen and K. Saranto and P. Scott and A. V{\"a}rri and J. Delgado and U.-M. Kinnunen and L.B. Pape-Haugaard and L.-M. Peltonen",

booktitle = "Integrated Citizen Centered Digital Health and Social Care",

address = "Netherlands",

url = "https://efmi.org/2020/02/10/efmi-stc2020-citizen-centered-digital-and-integrated-health-and-social-services/",

}

Kuster Filipe Bowles, J, Mendoza Santana, JJ, Vermeulen, AF, Webber dos Santos, TC & Blackledge, E 2020, Integrating healthcare data for enhanced citizen-centred care and analytics. in M Hägglund, P Gallos, K Häyrinen, K Saranto, P Scott, A Värri, J Delgado, U-M Kinnunen, LB Pape-Haugaard & L-M Peltonen (eds), Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators. Studies in Health Technology and Informatics, vol. 275, IOS Press, pp. 17-21, EFMI 2020 Special Topic Conference, 26/11/20. https://doi.org/10.3233/SHTI200686

Integrating healthcare data for enhanced citizen-centred care and analytics. / Kuster Filipe Bowles, Juliana; Mendoza Santana, Juan Jose; Vermeulen, Andreas Francois et al.
Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators. ed. / M. Hägglund; P. Gallos; K. Häyrinen; K. Saranto; P. Scott; A. Värri; J. Delgado; U.-M. Kinnunen; L.B. Pape-Haugaard; L.-M. Peltonen. IOS Press, 2020. p. 17-21 (Studies in Health Technology and Informatics; Vol. 275).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

TY - GEN

T1 - Integrating healthcare data for enhanced citizen-centred care and analytics

AU - Kuster Filipe Bowles, Juliana

AU - Mendoza Santana, Juan Jose

AU - Vermeulen, Andreas Francois

AU - Webber dos Santos, Thais Christina

AU - Blackledge, Euan

N1 - This research is funded by the EU H2020 project SERUMS: Securing Medical Data in Smart Patient-Centric Healthcare Systems (grant code 826278).

PY - 2020/11/26

Y1 - 2020/11/26

N2 - The potential of healthcare systems worldwide is expanding as new medical devices and data sources are regularly presented to healthcare providers which could be used to personalise, improve and revise treatments further. However, there is presently a large gap between the data collected, the systems that store the data, and any ability to perform big data analytics to combinations of such data. This paper suggests a novel approach to integrate data from multiple sources and formats, by providing a uniform structure to the data in a healthcare data lake with multiple zones reflecting how refined the data is: from raw to curated when ready to be consumed or used for analysis. The integration further requires solutions that can be proven to be secure, such as patient-centric data sharing agreements (smart contracts) on a blockchain, and novel privacy-preserving methods for extracting metadata from data sources, originally derived from partially-structured or from completely unstructured data. Work presented here is being developed as part of an EU project with the ultimate aim to develop solutions for integrating healthcare data for enhanced citizen-centred care and analytics across Europe.

AB - The potential of healthcare systems worldwide is expanding as new medical devices and data sources are regularly presented to healthcare providers which could be used to personalise, improve and revise treatments further. However, there is presently a large gap between the data collected, the systems that store the data, and any ability to perform big data analytics to combinations of such data. This paper suggests a novel approach to integrate data from multiple sources and formats, by providing a uniform structure to the data in a healthcare data lake with multiple zones reflecting how refined the data is: from raw to curated when ready to be consumed or used for analysis. The integration further requires solutions that can be proven to be secure, such as patient-centric data sharing agreements (smart contracts) on a blockchain, and novel privacy-preserving methods for extracting metadata from data sources, originally derived from partially-structured or from completely unstructured data. Work presented here is being developed as part of an EU project with the ultimate aim to develop solutions for integrating healthcare data for enhanced citizen-centred care and analytics across Europe.

KW - Healthcare

KW - Data lake

KW - Integration

KW - Blockchain

KW - Data analytics

U2 - 10.3233/SHTI200686

DO - 10.3233/SHTI200686

M3 - Conference contribution

SN - 9781643681443

T3 - Studies in Health Technology and Informatics

SP - 17

EP - 21

BT - Integrated Citizen Centered Digital Health and Social Care

A2 - Hägglund, M.

A2 - Gallos, P.

A2 - Häyrinen, K.

A2 - Saranto, K.

A2 - Scott, P.

A2 - Värri, A.

A2 - Delgado, J.

A2 - Kinnunen, U.-M.

A2 - Pape-Haugaard, L.B.

A2 - Peltonen, L.-M.

PB - IOS Press

T2 - EFMI 2020 Special Topic Conference

Y2 - 26 November 2020 through 27 November 2020

ER -

Kuster Filipe Bowles J, Mendoza Santana JJ, Vermeulen AF, Webber dos Santos TC, Blackledge E. Integrating healthcare data for enhanced citizen-centred care and analytics. In Hägglund M, Gallos P, Häyrinen K, Saranto K, Scott P, Värri A, Delgado J, Kinnunen UM, Pape-Haugaard LB, Peltonen LM, editors, Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators. IOS Press. 2020. p. 17-21. (Studies in Health Technology and Informatics). doi: 10.3233/SHTI200686

Integrating healthcare data for enhanced citizen-centred care and analytics

Abstract

Publication series

Conference

Keywords

Access to Document

Fingerprint

Projects

SERUMS: SERUMS

Cite this